I’m chronically ill. My ability waxes and wanes. When folks see me out doing something challenging, they tend to assume I’m just fine and must be some shiftless malingerer. Rather than understanding I’ve sunk a lot of time and preparation into trying to be ok for that occasion.
I have a neuromuscular demyelinating disorder called CIDP. And some other health complications including getting COVID induced pulmonary embolisms and being on a blood thinner that has interfered with my normal regimen of managing CIDP.
I’m chronically ill. My ability waxes and wanes. When folks see me out doing something challenging, they tend to assume I’m just fine and must be some shiftless malingerer. Rather than understanding I’ve sunk a lot of time and preparation into trying to be ok for that occasion.
What are you chronically ill with?
I have a neuromuscular demyelinating disorder called CIDP. And some other health complications including getting COVID induced pulmonary embolisms and being on a blood thinner that has interfered with my normal regimen of managing CIDP.
Oh man, as someone with a fairly mild and easily treatable cancer who is constantly fatigued I feel the hell out of this.