Do you ever think that maybe a diagnosis you received may have come back to bite you?

  • @[email protected]
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    4520 days ago

    I’m on the autism spectrum, with very low support needs. My health care provider has that in my medical records. Now I’m worried that I’m going to disappear into some camp, and my wife will never know what happened.

    • @[email protected]
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      919 days ago

      I’ve never been happier not to have an official diagnosis. My wife and I are considering our options.

      Ireland? New Zealand? We both have semi in demand skills. I’m a tradesman and she’s a social worker. Realistically we’re stuck here but looking at what we might be able to do

    • @[email protected]
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      418 days ago

      The psychologist who did like a shortened test on me actually recommended against going further and also getting diagnosed by a psychiatrist if I don’t want any official support. Just not worth a lifetime of discrimination within the medical system. I’m noticing it happening with my ADHD diagnosis. That one’s worth the discrimination though, since the treatment is a life saver (potentially literally).

      • @[email protected]
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        116 days ago

        Agreed, treatment changed my ADHD life. And it’s still nowhere near removing all of the symptoms

      • @[email protected]
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        20 days ago

        RFKjr is setting up a national autism registration and he’s already proposed to send neurodivergent people to farms. It’s pure Nazi eugenics.

        • @[email protected]
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          519 days ago

          My pet goldfish was also sent to a farm when I was a kid. Sending people to farms sounds like a euphemism for extermination.

        • @[email protected]
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          220 days ago

          I did a search, and discovered articles pointing to sending addicts to farms. I couldn’t find anything similar for neurodivergent people.

          Can you link something?

            • @[email protected]
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              20 days ago

              The article specifically states that the reason for getting this info is to link with other datasets to look for causes for the increase in autism cases.

              “Linking CMS claims data with a secure real-world NIH data platform, fully compliant with privacy and security laws, will unlock landmark research into the complex factors that drive autism and chronic disease — ultimately delivering superior health outcomes to the Americans we serve,” he said.

              It makes no mention of farms for neurodivergent people. That’s some nonsense.

              • Spider Jerusalem
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                1219 days ago

                He’s “looking for a cure” that he knows doesn’t exist. This is eugenics.

                • @[email protected]
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                  -519 days ago

                  Where do yall come up with this stuff, and do you actually believe it? He’s attempting to find the CAUSE of autism by joining datasets. Any mention of CURE would be in the context of curing society of the problems causing it. That’s all.

                  I swear yall are either master misinfo spreaders or so blind across party lines that you don’t use your brains or something.

                • @[email protected]
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                  -319 days ago

                  That has nothing to do with autism. He’s never even insinuated that neurodivergent people need nature and “farming” to recover.

                  Interesting opinion in the article though. I’m pretty interested in his full idea/plan with mental health treatment. I recovered from a lifetime battle with alcohol at a men’s spiritual recovery center which operates on similar principles. So I have a unique view into that.

                  Again tho, completely unrelated to his investigation into the causes of autism. Why are you conflating the two things?

        • @[email protected]
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          -1620 days ago

          What?! Can you provide some sources on this?

          That seems to be complete nonsense. RFKjr is working to determine the cause of the increase in autism rates by linking datasets. Specifically looking into correlation with vaccines.

          There has never been talk of sending neurodivergent people to farms or camps.

  • @[email protected]
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    3520 days ago

    I know my wife wishes she had never been officially diagnosed with depression, as it precludes her from some jobs she wanted to apply for. How true this is is reality, I don’t know.

    • @[email protected]
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      2020 days ago

      Not sure where you’re located, but at least in the USA it’s definitely illegal for an employer to discriminate against a medical diagnosis like that. They aren’t even allowed to ask you private medical questions during the hiring process.

      • @[email protected]
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        3320 days ago

        It prevents you from jobs like airline pilots, the rationale being that placing someone potentially suicidal in control of a plane full of people isn’t a good idea. The rationale doesn’t really make total sense but you can see why they’d think that way.

      • ALoafOfBread
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        1920 days ago

        It’s illegal unless there’s a bonafide occupational qualification that your disability prevents you from performing. Like you couldn’t apply for a job as a furniture mover if you’re a quadriplegic and cry discrimination when they don’t select you. And the employer can ask things like “this job requires that you lift heavy objects of up to 600lbs with the assistance of another person and a back brace. Do you have any medical or other reason you could not perform these duties?”.

        Now if that weren’t a real occupational qualification, that’d be discriminatory. Like if they said you had to be a man for that moving job - there’s no reason you have to be a man, you just have to be able to move 600lb things.

    • @[email protected]
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      2120 days ago

      I’m just so tired of checking every single ingredient list.

      Also tired of terms at restaurants like “Gluten Aware”, “Gluten Conscious”, etc. Then you find out everything is still going in the same fryer 🫤

      • @[email protected]
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        720 days ago

        Also tired of terms at restaurants like “Gluten Aware”, “Gluten Conscious”, etc. Then you find out everything is still going in the same fryer

        At least they’re aware of it.

      • @[email protected]
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        520 days ago

        Gluten appears to be pixie dust just thrown about in kitchens and mass food production facilities. It is shocking how much contains it or is near it.

        I haven’t heard of a gluten aware restaurant. But the term sounds irritating.

      • @[email protected]
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        419 days ago

        I really appreciate places like Subway and Taco Bell that just tell you up front they probably have cross-contamination on everything. Most places the workers don’t even know what gluten is. When I explain, they think I should just say I don’t want bread.

        • @[email protected]
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          319 days ago

          Subway is way off my list. They cut the bread over the meat. You can watch the crumbs fly right in.

      • @[email protected]
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        117 days ago

        I’m not sure if I’m severe - I get a three-day migraine that is not unresponsive to medication if I eat gluten. 🤷 I was vitamin deficient and had damage to my intestines, but that’s fixed now. I have a lot of other weird food stuff going on, but am still unclear if it is even related. The biggest complication is not being able to eat out easily. And I’m that person at parties that I brings their own food.

        • @[email protected]
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          217 days ago

          I’m so used to not eating out, eating at family gatherings. Cooking everything from scratch with salt only. Low fodmap, low sugar, low fat. I have SIBO. Liver issues, kidney failure, migraines, basically systemic issues. Can’t tolerate anything hardly at all. Top 9 allergen free. I feel like a basket case of issues with mine. So I was curious about you.

          • @[email protected]
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            117 days ago

            Oh! I didn’t realize it can cause other things. I have hashimotos, can’t eat soy or animal products and am dizzy sometimes when holding completely still. You are not alone - I just didn’t connect all of mine with celiac.

      • @[email protected]
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        920 days ago

        I guess I was thinking if I didn’t have it, which means I could eat everything without having to ask a million questions or carefully researching products/ingredients.

        If I wasn’t diagnosed but still had it, I’d be very sick and malnourished.

  • @[email protected]
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    1420 days ago

    I’m 50/50. On one hand it’s interesting and good to know about yourself and your issues but it is a double-ended sword. I was diagnosed with ASPD a little while back among other things and while I’m glad I understand the root for a lot of my problematic traits I now also have a piece of paper that makes me look bad if I have to go to court.

  • ComradeSharkfucker
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    1019 days ago

    I am really glad and very priveleged to have been diagnosed with ADHD. However, I worry that my official diagnoses might put me in danger soon

    • OADINC
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      119 days ago

      In the Netherlands you can remove your ADHD diagnosis (at least when moving from child to adult care, if I recall correctly)

  • I wish I straight up just didn’t have the things I was diagnosed with. The diagnosis themselves haven’t changed anything other than now I at least know I am not a piece of shit on purpose.

  • @[email protected]
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    719 days ago

    Had a hard time figuring out life in my early 20’s. Sought help, and got a mental health diagnosis and some meds that I took for a while. 20 years later it’s clear that it was either a misdiagnosis of simple existential angst, or I figured shit out in the meantime. Paying 40% more for life insurance and need reports from the doctor I haven’t seen in 18 years each time I have to renew security clearance.

  • Didros
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    720 days ago

    …diagnosis from who?

    Myself: meh, I could be wrong, I’m not a professional.

    Doctor: hahahahaha what? What am I? Made of money?

  • @[email protected]
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    420 days ago

    It ain’t nothing, but fuckin eczema lol. Gotta lotion up every day and even then, sometimes you get random flare ups.

  • @[email protected]
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    420 days ago

    I will never be able to get a small engine private pilot license due to fainting, despite it literally never happening unless I’m standing up…

    • @[email protected]
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      1020 days ago

      Airplanes pull G, making it far more intense than being standing. You would absolutely faint in a plane; this one is kinda fair, sorry bud.

      • @[email protected]
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        120 days ago

        I’ve got 10 hours in a little ultralight. Pre-diagnosis. I’m not looking to fly a jet fighter. I get more G’s in a hang glider.

    • Didros
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      220 days ago

      …I agree with this one. You fainting in a plane turns you into a missile after all.

  • The Giant Korean
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    320 days ago

    It’s good to know that I was diagnosed with food allergies. I might not have ever known what was making me feel horrible all this time.

  • @[email protected]
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    320 days ago

    Depression 100% I have lost so much of my youth to it, and even now with my meds and lifestyle changes it still finds its way back into my life. Hell, depression is the reason why I’m 21 and still in highschool! It’s an awful condition

    • ddh
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      1120 days ago

      Wouldn’t being undiagnosed, presumably without those meds, be worse though, not better?

  • @[email protected]
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    19 days ago

    I’m not diagnosed and I’m seriously considering keeping it that way. My nephew is so hoping the political situation in the UK doesn’t go that way.

  • haui
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    318 days ago

    No, not once. I’ve got ablot of issues due to nobody giving a shit when I was young making the tiniest effort to get shit diagnosed and properly taken care of. On top it was out of pure naivety due to the belief that if youre not diagbosed its not true and partly science denial.